Patient & Family Resources

Patient & Family Resources are organized into the following categories

ADMI-generated Resources

Navigating the Maze: Getting an ASD Diagnosis and Moving Forward by ADMI's Dr. Cora M. Taylor

General Resources

Association for Science in Autism Treatment (ASAT)

ASAT is a not-for-profit organization of parents and professionals committed to improving the education, treatment, and care of people with autism. Since autism was first identified, there has been a long history of failed treatments and fads, levied on vulnerable individuals as well as on their families. From the scandal of the “refrigerator mother” theory, to the ongoing parade of “miracle cures” and “magical breakthroughs,” history has been dominated by improbable theories about causation and treatments. Many of these treatments have been too quickly adopted by professionals, too readily sensationalized by the media, and too hastily embraced by hopeful consumers – well before supporting evidence or reasonable probability existed for their effectiveness or safety. Since ASAT was established in 1998, its goal has been to work toward adopting higher standards of accountability for the care, education and treatment of all individuals with autism.

Autism Science Foundation

The Autism Science Foundation's mission is to support autism research by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing, and disseminating autism research. The organization also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism.

International Society for Autism Research (INSAR)

The International Society for Autism Research (INSAR) is a scientific and professional organization devoted to advancing knowledge about autism spectrum disorders. INSAR was formed in 2001 and is governed by an elected, volunteer Board of Directors who oversee all functions of the Society. Various committees assist the Board in carrying out the mission of the Society.

National Institute of Neurological Disorders & Stroke (NINDS) - Autism Fact Page

The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

American Academy of Pediatrics

The American Academy of Pediatrics is an organization of 60,000 pediatricians committed to the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.

Simons Foundation Autism Research Initiative (SFARI)

Launched in 2005, the Simons Foundation Autism Research Initiative (SFARI) is a research campaign within the Simons Foundation's overall suite of programs. SFARI's mission is to improve the diagnosis and treatment of autism spectrum disorders by funding innovative research of the highest quality and relevance.


ASERT is a statewide initiative funded by the Bureau of Autism Services, PA Department of Public Welfare. The ASERT (Autism Services, Education, Resources, and Training) Collaborative is a key component of the Bureau of Autism’s strategy for supporting individuals with autism and their families throughout the Commonwealth.

Autism Speaks

Autism Speaks is an autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.

Interactive Autism Network

The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people affected by autism spectrum disorders (ASD) and hundreds of researchers in a search for answers. Individuals with an ASD and their families can share information in a secure setting to become part of the largest online autism research effort.

Autism Connection of PA

ABOARD’s Autism Connection of PA provides autism support across the state of Pennsylvania.

Advancing Futures of Adults with Autism

The vision of Advancing Futures of Adults with Autism (AFAA) is to increase the number of housing options available to adults with autism and other developmental disabilities by advancing new residential prototypes that consider innovation, individuality, community integration, and choice while balancing economic realities. AFAA is committed to energizing an era that brings public, private and nonprofit sector interests together, and allows adults with autism and their families to choose their residence based on their individual needs.

Centers for Disease Control and Prevention (CDC) - Developmental Disabilities

Centers for Disease Control and Prevention (CDC) - Autism Spectrum Disorders

National Autism Center’s National Standards Report

Behavior Analyst Certification Board (BACB) guidelines for health plan coverage of applied behavior analysis treatment for autism spectrum disorder

How Do I Register with the Intellectual Disability (ID) System? (Pennsylvania)

Toolkit for Primary Care Providers

Healthcare for adults with intellectual and developmental disabilities

Smart IEPs

Early Intervention, Behavioral, Speech-Language, and Community Resources

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